Precision care for Lynch syndrome

According to advocacy estimates, over one million Americans have Lynch syndrome and around 95% are estimated to not be aware of it.¹

Lynch syndrome is an inherited condition that increases the risk of certain cancers. Because specific genes affect the type and timing of cancer, each person’s experience is different. That’s why research in screening and treatment is essential.

Exact Sciences partners with AliveandKick’n to raise awareness and provide resources for people with Lynch syndrome and hereditary cancers. Together, we aim to help more people understand their risks and take informed steps for their health.

AliveandKick'n turns confusion into action by explaining complex medical guidelines in plain language. The organization connects patients and caregivers through workshops and virtual Community Conversations. It works with its medical advisory board to create culturally relevant resources.

"We want to make a difference for current and future hereditary cancer patients. Part of that is helping to navigate the system, offer insights into options, share a smile, look for research trials, and aggregate pertinent data to research potential cures,” said Dave Dubin, co-founder of AlivenKick’n, three-time lynch cancer survivor, and Senior Principal Strategic Accounts Director.

Precision Oncology, at Exact Sciences. “Genetics is making huge strides almost every day. Precision medicine, immunotherapy, and gene sequencing are the future.”

Exact Sciences supports AliveandKick’n’s Spanish-language programming and its Living with Lynch patient workshop. The workshop brings patients and experts together to share knowledge, build supportive connections, and discuss research, clinical trials, treatments, and screening.

“Lynch syndrome's broad cancer impact makes it a unique and powerful diagnosis regardless of where an individual is within their cancer continuum,” Lead Patient Advocacy Manager Tawanna Williams says. “This aligns with our goal to help eradicate cancer by preventing it, detecting it earlier, and guiding personalized treatment through advanced genomic testing and screening solutions.”

1. Fight Colorectal Cancer. (n.d.). Lynch syndrome. Fight Colorectal Cancer. https://fightcolorectalcancer.org/facts/genetics/lynch-syndrome/